Thursday, August 25, 2011


The time is upon us... the meal is prepared and the guests are getting ready to attend. Lets feast!

Thanks to Trish, Scott, KJ, Hope, Terri, Jen, Jacquie, Karen, Laura, Meghan and Brian. I can't tell you how many people have commented on how amazing this team has been.

Thanks also to the ladies at the Cystic Fibrosis Foundation in Vancouver.

Oh crap... who has the serving trays?

Puck Drop

The puck drops tomorrow at 8 bells at 8 Rinks in Burnaby. A lot of people have poured endless hours into making this event Epic! My hope is that by the end of the 10 days we have told a story, about what 40 women and a group of hardcore volunteers are willing to do to raise awareness for a disease called Cystic Fibrosis.
Thanks to all those who are taking part in this event. I look forward to the day when we get the news that a Cure has been found! See you at the rink...

Thursday, August 4, 2011

Wrapping History

So exciting, the Edge is done!

When I asked Eva's dad if he wouldn't mind me plastering her picture on a vehicle. He told me it would be great, Eva loved the attention.

Here it is...

Window of Pain

Window Pain 

When you have a chronic, progressive disease
You are guided forward, each step of the way.
You build upon your experiences of pain, disability and vulnerability.
Slowly, layers are added so you are not overwhelmed.
Sometimes you lull yourself to sleep with self pity
(as soothing as a blanket of snow).

The pauses are reprieves: as you adjust and accept.
The memories of what you were once able to do
are as salt to a wound.
So you learn to close the door,
and you're left gaping through a window that once held promise but now is simply a reflection
of what you used to be.

By Lucia Tavano

When you meet someone with Cystic Fibrosis

Your life will change... mine did! My friend Lucia may have saved my life... seems kind of extreme but when a 21 year old is running through life recklessly with little regard for oneself or others anything can happen.

Lucia, my poor sick friend slowed my mind and calmed the waters. I listened to her poetry and she listened to my stories of the outside world as I sat in the chair beside her bed in the hospital.

We would talk about travelling to distant countries, camping on the beaches and making friends. I would bring a flashlight to the hospital, at night we would place a piece of paper over the light, poking holes in it then we'd pretend we were looking at the stars.

After my dear friend died I travelled and saw all those places we spoke about. Because of her I didn't just run through these beautiful places, I sat and breathed in the beauty that surrounded me.


Saturday, June 25, 2011


Melanie one of the players in the "longest Game" put an amazing event on a couple nights ago. Dress up in your worst Bridesmaid dress then come watch a private viewing of the movie Bridesmaids.

She managed to get over 70 people to attend this awesome event.

I'm still amazed at how the word about this disease called Cystic Fibrosis is spreading... I love it! Mel gave a speech before the movie started. At a couple points her voice was breaking up as she asked for their donations stating how research can potentially better the life of a person with CF and lead to a cure. When the day arrives that a cure for CF is found, all those that donated can take pride in the fact that they played a role in this.

If Eva Markvoort only knew how much she has done to raise awareness about Cystic Fibrosis and Organ donation. She is a true hero!

Melanie your a hero too!