When you have a chronic, progressive disease
You are guided forward, each step of the way.
You build upon your experiences of pain, disability and vulnerability.
Slowly, layers are added so you are not overwhelmed.
Sometimes you lull yourself to sleep with self pity
(as soothing as a blanket of snow).
The pauses are reprieves: as you adjust and accept.
The memories of what you were once able to do
are as salt to a wound.
So you learn to close the door,
and you're left gaping through a window that once held promise but now is simply a reflection
of what you used to be.
By Lucia Tavano